COMMENTS: Good story on use of RWE / RWR in oncology.
READ TIME: 2 mins
*1. “Sir Mick Peake, clinical director for the Centre for Cancer Outcomes
within UCLH’s Cancer Division, demonstrated how data showed that survival
for patients receiving the same therapy has varied over time, providing
valuable insights into how NHS providers are performing and whether the
quality of care has improved or deteriorated.” *
*2. “The UK has already taken steps towards providing the coordination
required to maximise the benefit of the available data in the UK within
cancer, namely through DATA-CAN: The Health Data Research Hub for Cancer –
a UK-wide partnership hosted by UCLPartners in partnership with Genomics
England, IQVIA, Leeds Teaching Hospitals NHS Trust, Queen’s University
Belfast and the University of Leeds.” *
*3. “Focused on unlocking the power of health data to improve cancer care,
DATA-CAN aims to make high-quality health data more accessible for cancer
researchers and clinicians in a safe and responsible way, facilitating
research into new diagnostics, treatments and improvements in care to give
NHS patients faster access to clinical trials and new treatments.” *
*4. “By using a synthetic patient data set called the Simulacrum, which is
structured to model the properties of England’s national cancer registry
database, known as the Cancer Analysis System (CAS), IQVIA can perform real
world studies in a simulated environment that can then be fully executed on
the CAS database with no risk to patient privacy.” *
*5. “Reconciling patient privacy and data access has long been a challenge
in the UK and across the globe, one that has hindered our ability to
reliably assess clinical efficacy and cost effectiveness of cancer
medicines in the real-world setting.” *
Source URL:
https://pharmaphorum.com/r-d/views-analysis-r-d/unlocking-health-data-to-improve-oncology-outcomes-2/